Journalist and NPR contributor Silverman’s brave and lucid new book My Heart Can’t Even Believe It: Science, Love, and Down Syndrome tells the story that transformed her life: the birth and growth of her daughter, Sophie, and Sophie’s diagnosis with Down Syndrome. Join us for a conversation with Amy and Elizabeth Aquino, blogger, author and advocate for special needs children, including her own daughter, also named Sophie, followed by a book signing, on Friday, May 6th at 7 p.m.
Silverman marshals her reporter’s acuity to give us a crash course in genetics, health care policy, marriage, and motherhood. Part memoir, part investigative reporting, part parenting manual, she says she wrote the book she desperately wanted to read but couldn’t find, meant not just for parents of kids with Down Syndrome, but rather a story for anyone touched by disability or difference. Interweaving history, pop culture, education, medicine and health care policy with a fearlessly honest story of raising a child with Down syndrome, she creates a surprisingly humor-filled and resonant work.
“Silverman’s fierce account of coming to terms with having a child with down syndrome is at once precise, mordant, and compassionate, and ultimately is exquisitely human… an inspiring account …and a humbling recalibration.” — Julie Lythcott-Haims, New York Times bestselling author, How to Raise an Adult
Amy Silverman is managing editor at Phoenix New Times and a commentator for KJZZ, the National Public Radio affiliate in Phoenix. Her work also has appeared on the radio show This American Life and in The New York Times. Amy holds a master’s degree in journalism from Columbia University. She lives in Arizona with her husband Ray and daughters Annabelle and Sophie.
Elizabeth Aquino is a writer living in Los Angeles with her three children, the oldest of whom has severe disabilities and is the inspiration for much of her work. Her essential blog, a moon worn as if it had been a shell, is a place where disability, poetry, politics and parenting intersect. Elizabeth’s work has been published in literary journals and anthologies, and in The Los Angeles Times. She was the recipient of a Hedgebrook Writing Fellowship for work on her current memoir Hope for a Sea Change.